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Thread: Positive news from a thyroid sufferer

  
  1. #8
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    Re: Positive news from a thyroid sufferer

    You could alternate between 125/150 every other day, as Thyroxine.
    I'm not an expert. I'm here to share my Thyroid journey and tell you all my experience of Thyroid disease.
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  2. #9
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    Re: Positive news from a thyroid sufferer

    Or you could get a Pill Cutter from Boots, very reasonable. Lots of people use these, me included.

    I think when you get close to optimal, it does become harder to fine tune and get the exact dose needed.
    Try your 137.5, and stick to it for at least six weeks to give your system a chance to settle on that
    amount. Too frequent changes can throw the whole system into confusion.

    Ginny

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    Re: Positive news from a thyroid sufferer

    Health update = terrible!!!

    i am feeling so bad at the moment. i have no idea what has happened to me, just the hypo symptoms have come to bite me very hard.

    I was trying to lower the dose of levoT from 150 to 125, but i was getting hypo symptoms. at the same time i started on the HC at 15mg. Anyway i got blood tested 3 weeks ago and the results showed my TSH still supressed but FT4 had come down from 24 to 18. No FT3 this time as well.

    So i still tried to lower the levoT after these results to try and get the TSH into range. however last wed i nearly feel asleep at the wheel coming home and i realised i needed to get straight back up to 150. i felt fine for about 5 days and then i have been hit again by tiredness.

    So now i am trying to use 175 of levoT (as of yesterday) but i feel no different.

    Why has this happened? Well i have a few ideas, but i dont know which is to be the reason:

    a) introducing hc has improved the T3 uptake and so has depleted my body of enough thyroid, hence i need to increase the meds.
    b) my adrenals are not working very well and so the T3 is not being absorbed
    c) i am hitting the RT3 brick wall, whereby my system is converting most of the T3 into the inactive RT3 so leaving me hypo.

    i suppose i have to tough it out to see how i respond to a higher level, but feeling like this is horrendous - tired, massive brain fog, chest discomfort and putting weight on around the stomach.

    my HR is still its normal 44-48 beats a minute and the blood pressure has increased a bit. i am usually at 140/ 70 or 80 now. my temps have been stable at 36.6, but they do drop down to 36.4 at times. Prior to this my temps were always stable at 36.6

  4. #11
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    Re: Positive news from a thyroid sufferer

    Hey Marsaday, sorry to hear your not feeling well. Is anything being done about your heart rate?

    I'm declining slightly too......I'm thinking maybe the darker nights, lack of vitamin D..I know Thyroid function can be affected by season changes.

    Have you thought about asking for your Thyroxine to be raised slightly to see if it helps??

    Keep us posted.

    Hope u feel better soon mate thumbup
    I'm not an expert. I'm here to share my Thyroid journey and tell you all my experience of Thyroid disease.
    If you want to chat, please dont hesitate to contact me, I will help where I can!!

    http://www.twitter.com/thyroidhelp

  5. #12
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    Re: Positive news from a thyroid sufferer

    i have done a raise by 25mgs and no change.

    i think this is an adrenal problem as i felt so tired this morning. so took 10mg of hc instead of 5. i am going to ramp up to 20-25 mg hc from now on and see what happens.

    i have only been on 15-17.5 before and it seems after 12 weeks my adrenals are asking for more. maybe it is this feedback loop.

    has anyone got experience of using hc ?

    i really am in a bit of a mess and am on hols in egypt this week. the relaxation has no effect on me sadly !

  6. #13
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    Hello @marsaday havent seen you for ages....how are things going with you? Did you manage to find a doctor who helped you at all?

 

 

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