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Thread: New members, say HELLO here!!!

  
  1. #267
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    sisi's Avatar

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    Hello!
    I am a hypothyroid patient since birth. I have been on thyroxin all my life.
    As I get older I have started to feel other symptoms linked to this thyroid disease, like chronical tiredness, palpitations, foggy brain, lack of concentration (mainly since I gave birth almost two years ago, it got much worse since then), dry skin, cold feet and hands. What to say about mental stuff, along the years I have been diagnose bipolar and anxious depressive. What a bunch of... I did therapy for years, I was prescribed antidepressants which I stopped taking after days or weeks due to very weird feeling when taking them. I dont need that type of medication, I need a GOOD doctor that understands Hypothyroidism like the palm of his/her hand and willing to help. I am tired of hearing gp's saying my t4, t3 and TSH levels are within the ranges. Ok, but... how about the other many symptoms?? it really frustrates me.
    After giving birth my hormones were all over the place and it's taken a long while until the levels got balanced. Still getting checked every three months or so. Due to this, my t3 was all over the place obviously, having not very pleasant mood swings.
    I have been dealing with this all my life and I have had no other choice that get used to it. But, I guess no one gets used to lose the plot from time to time, getting to the point of even ruining my relatioship.
    I need to find a doctor willing to do as many tests as its needed to find out whats wrong with me. I know my body, I know myself and I know there is something not right here. GP wont give me any specialist referral or test forms to get any done, other than the typical thyroid function.
    Please, help.

  2. #268
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    sisi's Avatar

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    Hello!
    I was born with under active thyroid gland and I have been on thyroxine all my life.
    As I get older I have started to feel other symptoms linked to this thyroid disease, like chronical tiredness, palpitations, foggy brain, lack of concentration (mainly since I gave birth almost two years ago, it got much worse since then), dry skin, cold feet and hands, weight loss (51,5kg at present), etc
    What to say about mental stuff, along the years I have been diagnose bipolar and anxious depressive. What a bunch of... I did therapy for years, I was prescribed antidepressants which I stopped taking after days or weeks due to very weird feeling when taking them. I dont need that type of medication, I need a GOOD doctor that understands Hypothyroidism like the palm of his/her hand and willing to help. I am tired of hearing gp's saying my t4, t3 and TSH levels are within the ranges. Ok, but... how about the other many symptoms?? it really frustrates me.
    After giving birth my hormones were all over the place and it's taken a long while until the levels have got balanced ish. Still getting checked every three months or so. Due to this, my t3 was all over the place obviously, having not very pleasant mood swings.
    I have been dealing with this all my life and I have had no other choice that get used to it. But, I guess no one gets used to lose the plot from time to time, getting to the point of even ruining my relationship.
    I need to find a doctor willing to do as many tests as needed to find out whats wrong with me. I know my body, I know myself and I know there is something not right here. GP wont give me any specialist or test referral forms, other than the typical for the thyroid function.
    I need to find the right doctor. I live near London, in Bromley area.
    I would appreciate if anyone could help me.
    .

  3. #269
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    Z_interactive's Avatar

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    finding a good endo? good luck
    it's damn hard!
    do you have HIPER symptoms? since you're losing weight?
    along the years I have been diagnose bipolar and anxious depressive. What a bunch of...
    hahhahha
    sounds familiar to me, i also did lot's of those drugs and they did nothing!
    i'm not from us so i can't really help you, sorry!
    but i can wish you good luck.
    take care

  4. #270
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    Hello!

    I feel very anxious posting on here as from some of the stories I have read many of you have been suffering with Thyroid problems for years. I have only recently been diagnosed as Hypothyroid after having my 2nd child and have been started on 100ug/l Levothyroxine. My GP has barely told me anything about the condition and I have had to research everything myself - I had no idea that there was a) so much to learn and b) so much controversy over the treatment of Hypothyroidism.

    I am not sure if it is a good thing or not, but as my symptoms have not really improved since starting the meds and I have been having constant allergic reactions and rashes my GP has referred me to an endocrinologist.

    I would really like some advice on what sort of questions I should be asking the endorinologist when I see him - There is so much information out there and my brain is a mash of facts, theories and paranoia!


  5. #271
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    It appears no one has posted for awhile, but I figure I will give it a shot anyways. I just turned 24 years old and when I was 16 I started experiencing some strange occurrences. In the same class every day I would experience what I assumed at the time would be 'hot flashes' where I could feel the heat rise and my body and I would get so hot and flush I thought I was going to pass out. One day in class I did. The doctor said I was hyperglycemic. I started bringing snacks to school and tried to eat regularly. Then began the heart palpitations, and the 'hot flashes' remained. Then started happening together and I was sure I was having a heart attack at 16. Even felt like my left arm would go numb. I ended back at the ER and tests showed I did have a heart murmer and I was put on a heart monitor for 72 hours. It took a while for my doctor to figure out what was going on when I found myself crying all the time and if I wasn't crying I was sleeping. All my friends were out enjoying their junior year of high school and I was happy sleeping for days. I was so tired and sad I couldn't do anything. My regular doctor continued tests and it did show I had hypothyroidism. The medicine seemed to make a difference. Though through the years I would have these 'attacks' where I was show the same hot flash symptoms and my fake heart attacks with crazy anxiety. I was in and our of the ER several times. This continued through college. I moved to Washington in 2010 and the symptoms continued and a college classmate suggested I see a doctor she had been seeing. He is a naturopath. He listened to all of my symptoms and pointed out things I thought were normal, were not so much. I was ultra skinny, nearly always constipated, I can't stand cold weather but other times break out in these hot flashes, I have extreme fatigue. He changed my medication to armour and my god did that make a difference.

    In the past year I have started experiencing some new strange occurrences. I am having these extreme nightmares that I think are real and even though my boyfriend is waking me up and telling me they are fake, I don't believe him. I can hardly get a nights rest, neither can my boyfriend.... I have also been having hallucinations, I suppose, where in my peripheral vision I am seeing things but when I go to look directly at them they are gone. My eyes are also beginning to do this twitchy thing where they dart back in forth very quickly and I have to shake my head to get it to stop. My doctor sent me to a neurologist but my insurance wouldnt pay for additional tests so I gave up.

    About two months ago I started coughing. I thought it was bronchitis. An urgent care doctor gave me antibiotics. I took them and didnt think about it but my cough has continued. My coworkers have mentioned my voice has changed. I hadn't really noticed, but they may be right. I also have this pretty consistent tickle in the back of my throat. I have also been experiencing strange patchy dry skin on my back. My hair has also been falling out which may be because I have been using a new hair stylist to dye my hair?

    Anywho this has been very long winded. I am making another appointment tomorrow....

  6. #272
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    On croatian forum some girls had lot's of your simptoms, and they still have!
    All you can do is find a good endo.
    friends were out enjoying
    so tired and sad I couldn't do anything.
    I know that sucks, since May 2012 I can't walk more than a mile, i just can't, it really sucks, but I don't have any other problems than lack of energy.
    good luck finding good endo.
    Did you do Thyroid ultrasound?

  7. #273
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    New members, say HELLO here!!!

    I have not but I think I'm going to have to.

 

 

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  1. Re: New members, say HELLO here!!!
    By jennyf in forum ThyroidHelp Welcome Area
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    Last Post: 26th June 2009, 06:43 PM

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