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Thread: My GP has accused me of not taking my meds as TSH level has risen from 6 to 13 in 6 weeks

  
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    Help Balloon My GP has accused me of not taking my meds as TSH level has risen from 6 to 13 in 6 weeks

    Just had a phone call from my GP regarding me blood test results. He first accused me of not taking my levothyroxin as my TSH has risen from 6 to 13 in 6 weeks.

    I am taking 150mcg of levothyroxin which he has just increased to 175mcg and said if it is not increase in 5 weeks he will refer me to an endocronologist.

    IS 150mcg high as he said this is the the most he has ever given anyone?

    Thank in advance

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    @lauramurillo82 That's what an incompetent GP would do. In layman's terms if your TSH is high that means you are hypothyroid. Introduction of thyroxine should bring those levels down and vice versa. He is thinking as you are taking levothyroxine, your TSH levels should have come down which they didn't.

    Question he should be asking "How do you feel as you are on thyroxine but your TSH numbers dont look right" Do you feel any better since starting on your medication or still old symptoms?

    Do you have any other test results as only TSH wont give you full picture. There are always complications hence GPs normally order for FT3 and FT4 test results as TSH doesnt tell you the full story.

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    Mike, you have been a great help, Im just a bit floored to be honest, never had such high levels but would explain why I have been sleeping 12+ hours a day and feel like i want to insert sharp objects in people!

    I just feel a bit dissapointed that a GP I have never met or spoke to before can accuse me of that, why would i not take my meds, does he really think I want to feel like this!?

    BTW my surgery allocates patients to 4 resident GPs but to get an appointment you could see anyone - reason for not seeing or speaking to my allocated GP before today.

    Also I am now hoping my levels dont improve so I can then see an endocronologist and hopefully get some answers from someone who knows what I am talking about and not judge me on what happens to other people - do you or anyone else know what seeing a specialist would involve?

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    You are welcome @lauramurillo82

    You do get agitated feeling after taking thyroxine but it'll go away after sometime. Can understand if you feel like inserting sharp objects in people and hopefully you don't lol

    Unless you find a good GP who knows what he is talking about, you'll get those sort of comments...you are depressed, you are not taking your medication, your levels are normal, you need to be active, you need to change your diet and habbits and list goes on. Learn to smile at them as there are plenty of knobheads like these.

    Don't expect miracles from Endocronologists either as they are extremely busy and run around like headless chickens. In first appointment, they will do your tests and ask your history and give you another appointment which is likley to be after 3 months. You wait in extreme frustration and prepare yourself with loads of questions to ask and finally the time comes.....you face a new Endo who asks exactly the same questions and gives you prescription for thyroxine.

    I don't want to discourage you but you get the picture. There are some very nice Endos who would treat you and listen to you but likelihood of finding one is quite slim.

    That was all the bad bits...now good bits. Your thyroid level is playing up so we don't exactly know what is the reason. GP wont find it as they can only find basic cases from test results. Your case is different as your TSH is not coming down. Take my advise and do this....Call your Clinic and speak to the nurse or receptionist and ask what politely what tests were ordered and what are the results and their ranges. Or best take a walk and get a print out of the results...will cost you 20p each page.

    If only test was TSH.....get an appointment with your GP and tell him that as TSH hasnt come down despite taking medicines, probabaly something wrong with Parathyroid or T4 is not coverting T3. To check these you'll have to request FT4 and Ft3 results. If your FT4 and FT3 levels are good, that means thyroid is okay but parathyroid is broken. Or it could simply be a case of increasing thyroxine levels as your body needs more.

    Everyone's demands for thyroxine is different. I take 150mcg to 175mcg but I dont have a thyroid. There are people who take up to 225mcg and they have little thyroid left. It all varies from patient to patient so if he hasnt prescribed something in the past, doesnt mean other patient wont need it.

    Sorry wrote it in quite a rush so feel free to ask if I messed up or something doesnt make any sense.

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    Thank You again Mike, will make an appointment to speak to him and see what he says, maybe i he realises im not a push over who will accept a load of twoddle he pay do something

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    If you get 'short shrift' just keep booking appointments. My GP didnt take it really seriously at first, but its a life long condition (well ,for me anyway) and I wont get better on my own,so now I tend to get 'better' treatment due to persistence and forums like this

 

 

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