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Thread: What to do??

  
  1. #1
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    Unhappy What to do??

    Hi guys

    A brief history, so you can perhaps understand where I'm coming from! I'm 27 and female.

    I was diagnosed in 2004 with hashimoto's. I had felt unwell for ages and had the battle of "it's anxiety or depression" I had to pay privately for the tests and diagnosis, as as some of you well know the NHS pretty much fobbed me off with ME. in the UK. Over the past 5 years, I've increased steadily to 125mgs thyroxine. I have problems with a goiter and 2 nodules which just haven't seemed to go away. in 2005 after 5 different NHS endos and one more private visit I had an ultrasound scan and FNAB, the scan showed difuse swelling and that the thyroid was cystic with 2 nodules. The biopsy couldn't determine whether they were hot or cold. So, i was left for monitoring....

    Approx 3 months ago, i started feeling worse with symptoms of dizzy/irritable/shattered/night sweating hypo and my goiter was bigger again. A lymph node on the side of my neck has swollen and my GP thought I should return to tests/scans again. So, i waited 2 months for an "urgent" endo appointment. I saw him yesterday...

    He was awful. I waited an hour and a half to be seen. He desperately wanted to get rid of me and wouldn't listen. He's reccommened that i have my bloods done and come back in a month. He felt my thyroid very quiclly and the new lump on the side and said "that lump is not a lymph node, it's part of your thyroid" I said "I'm sorry but i think you are mistaken, please look again" so he felt again and wrote a note "lymph enlarged" then sent me on my way.

    What makes me sad, is that i really had to beg to see a specialist and two hospitals responded! So, I still have another app next week at a different hospital. Should i just see them also?

  2. #2
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    Re: What to do??

    Hi Joolz,

    Very sad to hear you are having so many issues and I am totally with your with this Endo issue.

    I am sorry if it makes you more sad but dont expect any better response from Endos. They all the same. I remember when I was overactive and went to see Endo and waited 2 hours to be seen same like yours. Within 5 minutes she decided I need Radioactive Iodine therapy and I was on my way with blood test slips.

    It didnt change for the next 6 appointments when I decided to take control and created a fuss in the hospital that I want to be seen by the Professor (Who is incharge and seemed a reasonable person to me by face) Even then I was seen by an Endo and after 5 minutes he told me that I was seriously depressed and need my GP to prescribe me anit-depressent or something!

    The whole system is a joke here. If you are really want to get well that you'll have to take control but as you have nodules as well which need monitoring so you can't do much after from being a bit more aggressive?

    I hate GPs and Endos here....Endos are so-called specialists and they are absolutely useless

  3. #3
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    Re: What to do??

    The general term on the US site is Endoprat. Sorry, but they have earned it, well many of them, I suppose there are exceptions to the rule.
    Mine was a lovely man, just had no idea how to get me well, possibly highly trained in diabetes or something other than thyroid? Anyway hon, be assured you are not alone. Many of us have wanted to cry, or have cried, or want to scream when seeing both the GP AND the endos.

    I suppose you could complain, the NHS is asking for people to give feedback now apparently, think it might be about time we did.

    In the meantime yes see the specialist just don't ever expect much from them, then if you get something decent happening you will be pleasantly surprised
    God bless
    luv Dawnx
    ''If you don't know where you are going, any road will get you there.'' The Cheshire Cat, Alice in Wonderland

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    Re: What to do??

    Hey thanks for the replies dears

    i know it's asking a lot from endos, but there's something inside you just before you enter the room that has a glimmer of hope - that maybe this time they will understand... ah well.

    I did go to the other guy the following week. He was better, but still rather ignored what i was saying. He stuck a camera up my nose (which was nice) and after a feel of the old neck he said he would put me in for another ultrasound. 2 days later the hospital called to ask me to come in (yesterday) and told me not to eat after 10pm the night before but that I could have water. Strange i thought, they didn't ask this before...

    So i get there early, theres no queue! i'm straight into my gown and off into xray dept! Stand there the doc says "the chest x-ray is first" hmmm chest x-ray? oh well must be procedure? Then some random man feels my neck and asks me about swallowing... apparently I'm booked in for a barium swallow which is about to start!

    5 or so cups of awfulness later and every position i can get into, the xrays are finished. Doc performing the scans takes me into a room to talk about my results. He says "there is a swelling in your neck, it does look like a thyroid problem" I said "yes i have hashimotos" he says "oh it says on your notes possible thyroid problem" great...... I explain to him that i've been diagnosed for 4 years with hashis.

    "i think you probably should have had an ultrasound" he says..."but the sheet is ticked for barium swallow and chest xray.

    Longer story short, they called me and said I'm going to recieve an appointment for an ultrasound soon! Gah what an awful thing a barium swallow is! I felt sick for the rest of the day ewwwwww

    NHS: Wonderful.

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    Re: What to do??

    Oh u poor luv

    I had one of those it was awful but mine wasn't a mistake, however I didn't ever get the results

    Well, you know your thyroid is doing something in your neck, at least is showed something but a terribly hard way to go about it and now they need the ultrasound as well, wonderful! As you say, NHS

    Actually its not so funny because you were exposed to an unnecessary dose of radiation Bad job endo, bad job NHS. I do wish they would get their act together.

    Again, poor u, I feel for u I really do

    luv Dawnx
    ''If you don't know where you are going, any road will get you there.'' The Cheshire Cat, Alice in Wonderland

 

 

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