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Thread: So frustrating!!!

  
  1. #1
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    Lisau72's Avatar

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    So frustrating!!!

    I was diagnosed with hypothyroidism in 2006 and my thyroxine has gradually made its way up from 25mcg in the beginning to 175mcg and now, as of today, 200mcg. Yet despite this increase the dr doesnt think my thyroid is playing up again!!

    Been feeling 'off' for a few weeks, as usual put it down to other things, namely pms!!..however you can only blame pms for so long!! But then the past few weeks those unmistakable symptoms have wiggled their way in....anxiety, lethargy, joint aches and pains and finally the tears! Having spent 3 days not wanting to go to the dr as cant face the 'fight' but knowing I had to ...I even considered just 'upping' my meds by 25mcg myself as I know for sure what the problem is and what will sort it...anyway, finally got booked in for an urgent blood test yesterday which tested everything from TSH to liver function etc etc, I went to see the dr today for the results. Greeted with...well everything is absolutely fine....'Oh dear I think...it must be all in my head after all'...but then , the only thing we havent got yet is the TSH, that will take a couple more days...but I dont think there is any problem there.... Aaha!! Well its great that everything else is normal, but after discussing my symptoms and explaining they are the same ones I have everytime my TSH is up all I get is, well I dont think it is, it was fine last time...yup, it was fine 3 months ago, but 3 months before that it had jumped from around 1 to 5 and even then it was suggested I'd missed tablets...not likely, I enjoy feeling well too much!! My next favourite offering is 'are you depressed?' Nope Im not depressed, Im experiencing depressive symptoms but it is one of the signs that my TSH is up....then, nope dont think so. I think you've had a viral infection!! Especially with the aches and pains...do I want painkillers for that? NO!! I have general all over aches and pains but they dont warrant paint killers. Then...try taking some exercise....AAGGHH....I have been apart from the past two weeks when I just havent been able to face it due to feeling so rubbish!! Then, despite thinking my thyroid is fine, he says, oh well, take an extra 25mcg anyway!!! OMG!! Why is it so hard for them to accept that I know my symptoms, I know what they are and what it means??!! Im pleased I got my meds increased as that is what I wanted but it is so frustrating Drs dont want to accept I may know what is wrong. I just hope the blood test shows Im right....it may not be a huge jump up but I know it is up!! Grrr

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    Re: So frustrating!!!

    Hi Lisa

    Yep I completely understand your frustration! I too feel I know when to blame my thyroid and even though my GP is very understanding he is still reluctant to take my own knowledge seriously. When my labs were in range i.e TSH of 4 or 5 I would say "I read that as close to 1 as possible is optimum for many people" and he'd say "please stop googling" he's frightened that an increase may result in hyper and thinks that may cause a heart attack so getting an increase is like blood from a stone with him. At the same time as being frustrated with him i do understand his situation, it's all the red tape of modern society, if i were to have a heart attack he'd probably get the sack lol!

    I always get the "you've got a viral infection" also. Just last month I was sent home from a locum with painkillers for a Pulled neck muscle which was my inflamed thyroid. I feel like an absolute nause on my doctors surgery but it's just got to be done! They don't really understand that the disease causes depression and anxiety, it's not just something we have aswell!

    My doc tends to think that I'm anxious and depressed because i'm reading about thyroid disease and trying to educate myself.

    I sacked my first NHS endo, as the only specialist they had at my local hospital was a diabetes expert specialising in foot complications of diabetes! He told me I had ME and just because my sister and grandad had thyroid disease didn't mean i did, patronising b**t**d

    It's hard and tiring to push, but I think we all learn that that's the only way to get things done!

  3. #3
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    Stfluffybrain's Avatar

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    Re: So frustrating!!!

    Oh yes, and if you find you have Hashis or Graves, an autoimmune disease they dismiss it as a little lack or excess of secretion from your gland, nothing beyond that. Don't they know how serious thses autoimmune diseases are?
    I fully understand your frustration.

    lotsa luv
    Dawnx
    ''If you don't know where you are going, any road will get you there.'' The Cheshire Cat, Alice in Wonderland

 

 

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