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Thread: Suffering w/ Hypo too!

  
  1. #1

    Suffering w/ Hypo too!

    Hello,

    I'm so glad to join a forum where I can help and be helped. I have been suffering from thyroid disease ever since 1992. It started when I was just 14 years old with a hyperactive thyroid. Did the iodine radiation and was well for maybe a year or two until i fell sick one day and then began my never ending struggle with this awful disease. Being so young, I never questioned my doctor on what is this all about. I just knew that one day I'll wake up and i'll become hypothyroid and then I'd have to take a small pill for the rest of my life.

    I never really came to grasp the idea that I have to take this pill or I will be like a zombie and I will sieze to function. I dragged myself through college and managed to earn a B.S. degree some how. A month after my graduation from university I was married. I continued to take my pills but not daily. I think it really bothered me to think that this little pill controls me. I would go a few days or maybe a week without taking one pill. Of course, all this was a contributing factor to all the marital problems I was having. This however, all changed when I got pregnant, the doctor was very concerned about the low levels of thryoid and we were racing to adjust my levels as not to effect my pregnancy.

    After 8 years of marriage, I have 3 boys and a baby girl, all smart and healthy. I however, can't say the same thing about myself. After the delivery of my baby girl last year, I felt like a car out of gas. I have no energy to play with my kids, no interest in going out, I don't socialize with my friends as I used to, can hardly do my house work or cook for my family, can't seem to get enough sleep..ever, and my relation with my husband is really suffering. I used to take 175 mg of levethroid and my T3 test came back very low. In September I found a doctor that prescribed to me T4/T3 compounded medication instead of Armour as per my request. The process is very slow as I have to wait 6 weeks in between each adjustments of medication and until now my medication has been adjusted 3 times. I still feel awful. I recieved Ferritine injections, B12 injections, and I have tested low on testesteron hormon.

    The doctor did a blood test to check my cortisol level and the result came back fine, a few visits later I described to him one of my symptoms and he said you have low cortisol...DUHHH!!!. He still didn't prescribe anything for that or for my low testesteron.....He forgot (which is a problem with this doctor, I have to call and remind them about everything) and I didn't ask him again about it. I'm waiting until I can get my thyroid levels in check and then see if hopefully everything will get back to normal.

    I know one thing that I'm guilty of, and it's completely my fault...is my bad diet. I rarely eat. Sometimes it's just forgetting to eat ...which happens when you have 4 young children, and the other part is that I'm a really picky eater. I have now decided that I cannot continue on this course because it's taking me down hill fast. I have started yesterday taking a multivitamin-Energy reivtalization system called fatigued to fantastic which is highly recommended for hypothyroid patients. I'm planning to supplement my diet with coco nut oil and flax seed. I'm also taking Emergen-C drink for vitamin c and iron pills. I haven't stepped out of my house for about 5 weeks and haven't seen any of my friends for about 3 months. I'll let you know how my progress will be after taking these multivitamins. I'm feeling very optimistic about this...I can't wait to have some energy back. Life here I come

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    Re: Suffering w/ Hypo too!

    Hello Emma, lovely to see you here. I see you have a number of things to address and as you are obviously a very intelligent lady you shouldn't have a great deal of trouble doing it because you mentioned how much you need to get it all right now as it is having a negative impact on your life big time

    I just knew that one day I'll wake up and i'll become hypothyroid and then I'd have to take a small pill for the rest of my life. I never really came to grasp the idea that I have to take this pill or I will be like a zombie and I will sieze to function. I dragged myself through college and managed to earn a B.S. degree some how. A month after my graduation from university I was married. I continued to take my pills but not daily. I think it really bothered me to think that this little pill controls me. I would go a few days or maybe a week without taking one pill. Of course, all this was a contributing factor to all the marital problems I was having.

    Yes that small pill for the rest of your life sounds so simple but as you have probably grasped for everyone it isn't always that simple, I don't think you did yourself any favours missing so many replacements, I have no idea what your FT3 or FT4 was at this time so I cannot comment but you may have been putting a great deal of stress on your body to perform with unbalanced hormones, your adrenals will have had to pick up the slack. Not to worry though because after many years on levothyroxine many of us find our adrenals have been picking up the slack for us on that too. The fact your children were healthy is wonderful. The attitude to the pills could have been something to do with the frame of mind reflecting your hypothyroid state. It really effects the mind as you have probably noticed.


    This however, all changed when I got pregnant, the doctor was very concerned about the low levels of thryoid and we were racing to adjust my levels as not to effect my pregnancy. After 8 years of marriage, I have 3 boys and a baby girl, all smart and healthy. I however, can't say the same thing about myself. After the delivery of my baby girl last year, I felt like a car out of gas. I have no energy to play with my kids, no interest in going out, I don't socialize with my friends as I used to, can hardly do my house work or cook for my family, can't seem to get enough sleep..ever, and my relation with my husband is really suffering. I used to take 175 mg of levethroid and my T3 test came back very low. In September I found a doctor that prescribed to me T4/T3 compounded medication instead of Armour as per my request. The process is very slow as I have to wait 6 weeks in between each adjustments of medication and until now my medication has been adjusted 3 times. I still feel awful. I recieved Ferritine injections, B12 injections, and I have tested low on testesteron hormon. The doctor did a blood test to check my cortisol level and the result came back fine, a few visits later I described to him one of my symptoms and he said you have low cortisol...DUHHH!!!. He still didn't prescribe anything for that or for my low testesteron.....He forgot (which is a problem with this doctor, I have to call and remind them about everything) and I didn't ask him again about it. I'm waiting until I can get my thyroid levels in check and then see if hopefully everything will get back to normal.


    This is the problem, in my opinion, you are going up too slowly and it allows your hypo to kick in, in between raises of meds quite badly when I was raising. Also is the low cortisol, you cannot feel well nor can thyroid hormones get into the cells when you are suffering low cortisol. The general protocol should be treat adrenals first, thyroid second and when optimised balance up the other hormones other wise everything gets confused and you don't know where you are with it all. All Drs should know never to treat thyroid when a person is low in adrenal function it is quite dangerous and the warnings are there for a reason. However you are on TH now , and you seem to be tolerating ok, but I advise making sure you are low cortisol and what stage of adrenal fatigue you are in by doing a salivary adrenal test from one of the private labs (depends where you are) and treating accordingly, will have to come back to that. But if you feel hyper on a low TH dose you will know that either the adrenals or one of your other deficiencies is causing that.
    Making sure you have adequate ferritin, vit D, B12 and folate as well because that affects how well you respond to thyroid hormones. I don't know why you went for the componded in particular instead of Armour but I am sure you had your reasons. Armour contains other hormones your body needs though which won't be in the T3 T4 combo, however lots of people do fine on it.


    I know one thing that I'm guilty of, and it's completely my fault...is my bad diet. I rarely eat. Sometimes it's just forgetting to eat ...which happens when you have 4 young children, and the other part is that I'm a really picky eater. I have now decided that I cannot continue on this course because it's taking me down hill fast. I have started yesterday taking a multivitamin-Energy reivtalization system called fatigued to fantastic which is highly recommended for hypothyroid patients. I'm planning to supplement my diet with coco nut oil and flax seed. I'm also taking Emergen-C drink for vitamin c and iron pills. I haven't stepped out of my house for about 5 weeks and haven't seen any of my friends for about 3 months. I'll let you know how my progress will be after taking these multivitamins. I'm feeling very optimistic about this...I can't wait to have some energy back. Life here I come

    Fatigued to Fantastic is a good range, good supplements which should help a lot. Selenium helps with conversion of T4 to T3 so I am hoping that there is some of that in there. Yes the diet is important becaue low cortisol people with hypothyroid tend toward hypoglycemia which is another stress burden on your body, so please remember to eat I know how busy you must be with all the little ones


    Most of all give yourself time and look into the adrenals. You have obviously had a problem for a long time now and your body has done its best to compensate but now needs you to care for it lovingly It sounds as though you are making your mind up and you will do it.
    I will be really interested to hear how you go on with the supplements, onwards and upwards
    lotsa luv
    Dawnx
    ''If you don't know where you are going, any road will get you there.'' The Cheshire Cat, Alice in Wonderland

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    Re: Suffering w/ Hypo too!

    Hi Emma and quite a journey you have been through...Bless.

    I had a RAI therapy like yourself as I was overactive as well, the decision which I still regret to be honest but no one can change time so we just have to get on with it.

    Dawn has explained and answered everything that there is nothing to add to it. Adrenals are always an issue and if they are not severely damaged then they can recover easily with change of diet and life style. Like Dawn said if you have been through so much than there is a good chance that your adrenals may be exhausted....to what extents? No one knows to be honest unless you do proper testing.

    I hope you get recovered quickly and socialise like before Good Luck and keep us informed.

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    Re: Suffering w/ Hypo too!

    wow what a Journey,

    to the site, keep us updated

    Ric thumbup
    I'm not an expert. I'm here to share my Thyroid journey and tell you all my experience of Thyroid disease.
    If you want to chat, please dont hesitate to contact me, I will help where I can!!

    http://www.twitter.com/thyroidhelp

 

 

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