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Thread: In Search of the Impossible Dream?Research RE:Hypo-treatment

  
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    In Search of the Impossible Dream?Research RE:Hypo-treatment

    Here's an interesting quote from a medical research paper on treatment of hypothyroidism, written by a group of endocrinologists and very interesting . It is the type honesty I like seeing from doctors in the field of thyroid treatment research!

    "We tell our patients, "Itís really quite simple, your thyroid is not working (or has been removed or destroyed by our treatment). The tablet contains the natural hormone that your body cannot make. Donít worry, youíll be fine." For many of our patients, T4 therapy resolves their symptoms and they are fine. For some, however, this therapy remains unsatisfactory, with the persistence of specific symptoms or a failure to regain a normal sense of well-being."(The Journal of Clinical Endocrinology & Metabolism)

    Full article> http://jcem.endojournals.org/cgi/conten ... 88/10/4540
    (Avatar pic is of me & wife, 2008)

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    Re: In Search of the Impossible Dream?Research RE:Hypo-treatment

    Yes Jim, it is good to see it
    There is more and more slipping through now, maybe we will see a turnaround eventually after all the fighting patients have done to try and educate the professionals to our frustrating plight. Here is hoping and praying eh?

    lotsa luv
    Dawnx
    ''If you don't know where you are going, any road will get you there.'' The Cheshire Cat, Alice in Wonderland

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    Re: In Search of the Impossible Dream?Research RE:Hypo-treatment

    I agree Dawn!
    One of the major problems that patients also experience is the patronizing attitutes of some doctors. This gets in the way of them getting better treatments, possibly more than any other factor. The doctor-patient relationship should be a partnership of cooperative communication. I actually insist on this with dr.s and if they refuse, I move on to one who sees the importance in it. Even the US-NIH has radio commercials out expressing the importance in patients being very communicative with their doctors, taking notes with them to office visits etc... This is also the type information campaign that's needed! This month is Thyroid Awareness in the US and that's also the type thing that helps in this area.
    My article on Thyroid Awareness month> http://www.bellaonline.com/articles/art60328.asp
    (Avatar pic is of me & wife, 2008)

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    Re: In Search of the Impossible Dream?Research RE:Hypo-treatment

    I like it too, I just wish Doctors would know that we are not unique, you cant just throw one drug at a billion people and hope it sorts everyone out!!

    Doctors annoy the hell out of me, I have only ever met one understanding doctor.......
    I'm not an expert. I'm here to share my Thyroid journey and tell you all my experience of Thyroid disease.
    If you want to chat, please dont hesitate to contact me, I will help where I can!!

    http://www.twitter.com/thyroidhelp

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    Re: In Search of the Impossible Dream?Research RE:Hypo-treatment

    I have seen two endos, the first couldn't see beyond the TSH and anti-depressants and the second was a
    bit more polite but refused even to test my T3, let alone give me a trial. There are very few thyroid specialists, most of them are diabetic experts, and don't think hypos should be referred to them anyways,
    only hypers.

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    Re: In Search of the Impossible Dream?Research RE:Hypo-treatment

    I just saw your post ginny, I would urge you to see a different Endo at a different hospital..

    My Endo, well my first endo said that Cytomel was very vogue in the 80's and said it was popular with middle agd women (how very rude), he said, he would prescribe it, but wanted to get my TSH and T4 in a better state first and see how I felt....I gave up on him though as he and I were not going in the same direction!!

    Dont be afraid to leave all your doctors behind you in the stone age if they dont help you, there are plenty of other doctors in sea


    EDIT Ginny, I just realised you live close to me in the midlands!! where abouts?
    I'm not an expert. I'm here to share my Thyroid journey and tell you all my experience of Thyroid disease.
    If you want to chat, please dont hesitate to contact me, I will help where I can!!

    http://www.twitter.com/thyroidhelp

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    Re: In Search of the Impossible Dream?Research RE:Hypo-treatment

    Ginny,

    As you get back to Ric about your location I want to say I agree wholeheartedly with his advice! I personally went through four thyroid treating dr.s and the 5th one was the one for me. The past ones included an Endocrinologist and the one I kept, is an MD, board certified family practitoner. I realized sometime ago after reading the testimonies of many other patients, that the expertise of dr.s treating thyroid is not always in the type dr. they are but has more to do with their experience and updated knowledge. Some dr.s have been practicing for decades and have never done anything to update their knowledge despite there being so much progress with thyroid treatments.
    As you answer Ric's question about the area you live in, I also would ask if you have been diagnosed with positive thyroid antibodies? Or it could be your Doc wouldn't agree to test for those either. It does appear a second opinion by a qualified thyroid dr. would be important for you.
    (Avatar pic is of me & wife, 2008)

 

 

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