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Thread: HELP!!!

  
  1. #1

    HELP!!!

    I just don't know what else to do! I'm on doctor #3 and I can't get an answer or a doctor who seems to give a rip about my health and I'm ready to give up! I started on Levo. 25mcg in Jan 2007 weiging 170 lbs and my TSH at 5.77. I was down to end of summer 2007 by Chrismtmas of that year but was bumped up to 50mcg and was on that for almost a year and my TSH has been on the rise since. The Dr even tried going back to 25 mcg and that didn't work either. I currently am on 50mcg of Levo and my current TSH is 6.81 and I am back to 172 lbs WITH diet and exercise! My weight watchers coaches can't believe I'm gaining! What DO I need? I higher dosage? Something else? Any ideas of what is going to make me feel better (my skin is horrible, the hair is falling out, my monthly cycles are waaay screwed up, and I'm either waaay tired or wide awake!). HEEEELP!

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    Re: HELP!!!

    Hi Emily54868,

    Not to worry too much That's the first rule

    Now let's talk about your weight gain and levo. Before we do that, could you tell us a bit more about the history please?

    1) How was it identified that you had thyroid problems? Were there any symptoms? Routine check up?
    2) Did you have any blood tests done at all?
    3) Now you are on 3rd doctor, why did you leave the first 2? Did they not listen to you or did not treat you right? Are they GPs or Endos?
    4) Apart from weight gain and sleep being an issue, do you have any more health problems/symptoms?
    5) What time do you take your thyroxine? And when you increased your dosage from 25mcg to 50mcg, did you feel any improvement at all?

    Weight Watchers programme wouldn't help your much if your thyroid is low which makes your metabolism low hence, even without eating much, u'll gain weight.

    I am pretty much sure you are hypothyroid and just need increasing your dosage until you feel better. I think after going on 50mcg, your body has adjusted it all and it needs more that's why you are still have symptoms and raised TSH.

    You are gonna be okay soon thumbup

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    Re: HELP!!!

    hi Emily welcome to the site

    Your TSh shows that you are Hypo, I would say an increase in thyroxine is very much needed! Why did the doc reduce your Thyroxine??

    what doctor is helping you through this, a GP or an endocrinoligist? If its a GP I would ask to be referred to an Endocrinoligist!!

    No wonder you cant shift the weight you want, with a TSH like that! A good TSH level is between 0.3 and 3 if you have THYROID DISEASE

    Make sure you get help, demand it!!!

    Keep in touch Emily, and anything else dont be afraid to ask!!
    I'm not an expert. I'm here to share my Thyroid journey and tell you all my experience of Thyroid disease.
    If you want to chat, please dont hesitate to contact me, I will help where I can!!

    http://www.twitter.com/thyroidhelp

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    Re: HELP!!!

    THANK YOU SO MUCH FOR RESPONDING SO SOON!
    To answer your questions:
    1) How was it identified that you had thyroid problems? Were there any symptoms? Routine check up?
    My ob/gyn did a panel of blood tests every year and after the 3rd year of high tsh he decided to put me on something. I was having children at the beginning but after a few years of not having kids it was still high (5.77 when I started on the meds).
    2) Did you have any blood tests done at all?
    I had them done yearly by ob/gyn and then after going on meds every 6 weeks if the dosage was changed.
    3) Now you are on 3rd doctor, why did you leave the first 2? Did they not listen to you or did not treat you right? Are they GPs or Endos?
    The first was my ob/gyn and I only went to an endo to make sure i was getting someone who specialized in this. My second was an endo who wouldn't listen! She didn't have time for me I felt and obviously she knew how I felt better than I did. This 3rd Dr is suppose to be "a good endo" but I had blood drawn last fri and nurse called me yesterday and told me I'm up from 6.01 to 6.81 since Oct but I should stay on the 50 mcg and come back in 4 months! I have to wait 4 more months to feel good I asked her!?!? I told her I was on 50mcg already and it's obvious it's not working. She said she'd talk to Dr and get back to me. That was 24 hrs ago.
    4) Apart from weight gain and sleep being an issue, do you have any more health problems/symptoms?
    constipation, dry itchy skin, irregular menstrual cycles (never been a problem for me!), either so tired I can't get enough sleep or wide away in wee hours of morning or can't get to sleep (restless!), and I have suffered from anxiety and depression and was on meds (first was PPD with last baby) and ob/gyn said once i got thyroid under control depression would be better too.
    5) What time do you take your thyroxine? And when you increased your dosage from 25mcg to 50mcg, did you feel any improvement at all?
    I take my thyroxine at 5:30am (I don't eat breakfast until 8am). I tried taking it at night to see if that made a difference and I was MORE tired in the daytime. Is that normal? I THOUGHT I felt better on the 25mcg because I was losing weight nicely (my tsh was .99 at that time) and then when I went on 50mcg and started gaining again I was getting the whole sleep/no sleep and whatnot.

    Any more ideas?

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    Re: HELP!!!

    There are absolutely loads of symptoms with Thyroid disease, the main ones are tireness and weight changes, as well as mentaL HEALTH PROBLEMS depression, anxiety, hoarse voice, nutrition deficiency, loss of hair, carpel tunnell syndrome, changes in your cycle, heavy periods, sunken eyes, dry skin....The list goes on and on..

    I take it your from the United states, where ever you are, the best thing for you to do, is see a Thyroid specialist, and get your Thyroid sorted, its very important you do this!! Its also very important to keep a check on your blood tests maybe every 3 months until you start to feel better!!

    A thyroid specialist is also called a Endocrinologist, specialst of the endocrine system!!

    Hope this helps
    I'm not an expert. I'm here to share my Thyroid journey and tell you all my experience of Thyroid disease.
    If you want to chat, please dont hesitate to contact me, I will help where I can!!

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    Re: HELP!!!

    that's what I'm so upset about - I AM seeing an endocrinologist.
    Yes I am in the US and this whole health care system sucks. I feel like they just suck the $ out of me and only want to keep charging me more.

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    Re: HELP!!!

    It seems like you have an underactive gland and you are just not taking enough thyroxine to cop with it.All the symptoms which you have listed make me that you have an underactive thyroid and you just not taking enough thyroxine to cop with it.

    You also need to check your FT3 and FT4 levels. If your TSH is high, FT4 levels drop and so do the FT3 levels. These are the main hormones which keep you going for the whole day.

    If you seeing and paying an Endo anyway, then tell him/her that you would like to increase your dosage and see if it helps since reducing the dosage didnt. And you should never reduce/skip thyroxine unless you have hyper symptoms like racing heart, high pulse and temperature etc.

    I usually do my blood tests but am more inclined towards Dr. Durrant Barry Peatfield''s approach. According to him, if your temperature is low, your thyroid is low...very simple.

    Take your basal temperature everyday for a week and see what it shows. If it lowers than 97.5 degree F, you definitely hypo. Also take the readings through out the day and make an average of the whole.

    Read this article from Dr. Rind http://www.drrind.com/tempgraph.asp - Extremely helpful and you can download a chart, where you can put your temperature readings.

    I know it all sounds like a lot of hard work but trust me, if you dont fix it now, it will become even more difficult later on

 

 

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