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Thread: Hello my names Mand, nice to meet you all

  
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    Exclamation Hello my names Mand, nice to meet you all

    Hi, nice to meet you, I am Mandy!!

    Ive included a log, which Ive sent to private doctor Iam now going to about my thyroid. I thought it may help give a good picture of where Iam at. I am looking forward to chatting to you and helping others if I can and visa versa, in this awful land of thyroid disease!! (it wouldnt be awful if the NHS listened)!!!


    Hobbies: I was a personal trainer loved sports, and going out dancing and meeting people, shopping and reading etc. I cant excersise as before due to teh fatigue and also the muscle weakness in my right leg, i still try to go 3 times depending on how bad my leg is and the fatigue on taht day and i just do a very light work out (but it does depress me as i was very fit and my leg causes to much pain to cycle with any resistance so I try to do 20 mins on very low level.………………………………………………………………………………………………………………..
    Medical History:
    Appendix removed, nose rebroken, abnormal cells removed twice from cervix, ovarian cysts removed and hemeorage twice, Hiatus Hernia, cuyst in groin size of golball..
    Menstrual and Obstetric History (age periods began, normal, abnormal, pregnancies, birth weight
    and problems): .………………………………………..………………………………………………………………
    Periods began at age 13 years, two abortions (not through choice of my own)Came off the pill 7 years ago and no period for a year, i just went back on it at the time. Periods would be missed and then come back. In the last 3 years no period or very lihgt for one day. Currently no period for over a year apart from slight spot after cyst hemorage in Spetember 08. ………………………………………………………………………………………………………………………….…
    Present Symptoms (see list on following page and use if required):.…

    SKIN: Dry, dehydrated, wrinkly skin, loss of elasticty, itchy skin, sallow skin, bags under eyes, exma, doey belly, looking patches when eat allergic foods.

    SINUS: Right side blocked constantly, pains in nose and headaches.

    DIGESTIVE: Swollen belly all the time,distends when i tiered or eaten wrong foods, Constipation ( chronic impaction if I eat fruit sugar etc)
    Multiple allergies / intolerances to: yeast, sugar, fruit, wheat, tomatoes, fat makes me feel very nauseous, I feel best on celiac diet with very low carbs. If I eat wrong I am very sick to my stomach, massive distention, constipation, hungover feeling, anxiety heart palpatations, skin dries out more, feel dehydrated.
    Cant tolerate Caffine, Alchahol - had a seizure 3 years ago after drinking rum (not drunk since)
    SMOKING: Trying to give up smoking - smoke about 5 - 10 a day and notice I start sweating when i smoke my right leg goes cold on teh side i have the weakness and my anxiety is worse and can feel heart pounding faster.
    Excessive tierdness., sudden bouts of chronic fatigue, no drive or vitality, never feel refrshed when
    wake up
    WEIGHT: Weight gain (1/2 stone) / change in body shape (not alot of weight gain as I am on such a strict diet and am going off the food I have left to eat). Put on weight very easily. Poor muscle tone.
    ………………………………………………………………………………………………………………………
    GENERAL: Cold blue feet, feel the cold / sometimes intolerant of the heat sudden temperature changes, senstive to the sun….…
    night sweats, more so when ive eaten wrong
    Pins and needles
    Dizziness
    Palpatations
    Trembling insomnia, waking up to eat anything with sugar (more so when eating wrong foods.
    Loss of libido, no senstaion , repeated thrush, althletes foot, oral thrush
    Candida
    Heavy eyelids craving for salt, carbs, sugar
    Hypoglycemia
    Puffiness of: eyes, face, whole body when eaten wrong food like I am holding water.
    TMJ - jaw deviated to the right - Im seeing a consultant for this aparently caused by my facial wesakness but I also grind my teeth badly at night time.
    Dry mouth, ulcers (when eat wrong)Herpes (genital aswell)
    Sore tounge
    Hearing - deaf more in the right ear certain tones cant hear, constant whooshing sounds
    Eye brows thining and falling out, hair breaking, thinned, colour doesnt take at hairdressers
    nails break, flake
    …………………………………………………………………………………………………………………….…
    PAIN: Right side back pain bottom of ribs dull ache return s frequently, bone pain, muscle pain ache, pains up my right foot (bad shooting pains)
    DIGESTIVE PROBLEMS: Chronic consipation, food in stools, cuts aroiund anus, chronic wind.
    Periods stopped
    Dry red sore eyes
    MENTAL: Panic attacks, memory loss, poor concentrain, nightmares, jumping up suddenly in sleep heart pounding, Hallucinations, sleep wallking.
    EMOTIONAL - Easily upset, dont want to be around people, mood swings, nervous / anxiety
    depression (chronic/ Manic), lack of confidence, resentment, personality changes, Suicidal
    (even more so when eat wrong foods). (felt like I went a bit mad last year hullucinating).


    BLOOD TESTING ETC

    Positive ANA 1:80 speckled pattern
    Serum oestrodiol level :85.00 pmol/L -Oestradiol Reference range :female-follicular:100-610 Midcycle: 570-1620\n Luteal:200-730 -approx target range 200 - 600\nFasting
    U UREA 4.8 1.7 - 8.3
    CR CREATINE 46 49 - 92
    NA SODIUM 144 135-145
    K POTASSIUM 3.7 3.5 - 5.1
    GFR ESTIMATED >90

    BIL BILLRUBIN 5 0 - 20
    ALT ALT 46 10 - 35
    ALP ALK.PHOS 87 35 - 104
    ALB ALBUMIN 48 34 - 50
    CA CALCIUM 2.25 2.15 - 2.55
    P PHOSPHATE 1.28 0.87 - 1.45

    FSH 8.4
    FSH NOTE REF RANGE FOLLICULAR 3.5 - 12.5
    REF RANGE MID CYCLE 4.7 - 21.5
    REF RANGE LUTEAL 1.7 - 7.7
    REF RANGE POST MENO 25.8 - 134.8

    LH 7.4
    LH NOTE
    REF RANGE FOLLICULAR 2.4 - 12.6
    REF RANGE MID CYCLE 14.0 - 95.6
    REF RANGE LUTEAL 1.0 - 11.4
    REF RANGE POST MENO 7.7 - 58.5

    PRL PROLACTIN 178 102 - 496
    TSH 2.94 0.27 - 4.20
    FT4 13.6 12.0 - 22.0
    CORTISOL 347 @4PM
    CORTISOL REF RANGES: 9AM 171 - 536 : MIDNIGHT <140
    DHS 3.1 0.3 - 11.0
    OSM OSMOLITY 294 285 - 295
    GLUCOSE 3.7 3.9 - 5.8
    TEST TESTOSTERONE 1.2 0.20 - 2.90
    ESR 8 1 - 7
    WCC 11.15 3.0 - 10.00
    RCC RBC 4.62 3.95 - 5.15
    HB 13.6 11.5 - 15.5
    HCT 0.419 0.33 - 0.45
    MCV 90.7 80 - 99
    MCH 29.4 27.0 - 33.5
    MCHC 32.5 32.0 - 34.9
    RDW 13.9 11.5 - 15.0
    PLTS 298 150 - 400
    MPV 11.4 7.13
    DWCC 11.15 3.0 - 10.0
    NEP 62.6 40 - 75
    LYP 31.5 20 - 45
    MOP 3.7 2-10
    EOP 1.7 1 -6
    BASOP 0.5 0-2
    NEA 6.98 2.0 - 7.5
    LYA 3.51 1.5 - 4.0
    EOA 0.19 0.0 - 0.4
    BAA 0.06 0.0 - 0.1

    Cyst in lower sinus - confirmed by MRI scan
    Waiting to see neuromuscular consultant re: right sided weakness which came on sudden last year whilst very stressed, tried taking prozac (same night, stopped next night), servere stress.

    Please Give an Example of Your Daily Diet:
    Breakfast:…Omlette made with one egg and an egg white, a little bit of sweet potatoe and tuna. Sometimes I have a small bowl of brown rice (but hard to keep preparing)………………………………………………………………………………………………………… …
    ……………………………………………………………………………………………………………………………
    Lunch:…tuna/chicken with chikpeas and salad or rice and tuna No mayo, sauces just salt…………………………………………………………………………………………………………….….
    ……………………………………………………………………………………………………………………………
    Dinner: Chicken / mince with vegteables (Cant tolerate fat but try and have olive oil)
    Snacks: ……………Pumpkin seeds (allergic to Sunflower seeds)Not much I can snack on was snacking on rice cakes but they seemed to make me hypoglycemic.………………………………………………………………………………………………… …
    ……………………………………………………………………………………………………………………………
    Drinks (including alcohol): I drank rum 3 years ago and had a convulsion so not touched drink accept for vodka twice in the last few years, affects me too much.
    …………………………………………………………………………………………
    Vitamin & Mineral Supplementation: I am taking a multi vitamin (champneys) and I try to take magnesium as it seems to help with constipation if i take it to bowel tolerance. I am struggling with money so i try and get b vitamins if i can.

    Do You Have Any Food Cravings? (please specify)
    I try and stick to low gi , which helps the food cravings, my diet is so bland sometimes I get fed up and cheat and then it makes me crave even more. I crave in particular bread and salt………………………………………………………………………………………………………………………… …
    Which Foods Do You Hate and Therefore Avoid Eating? (NOT due to allergy or intolerance)
    I am now sick of tuna makes me feel physcialy sick from eating too much, and oily fish or food makes me nauseous. I am bored of eating rice all the time.
    Lately I have skipped many meals as cant be be bothered to eat whats left to eat.
    ……………………………………………………
    Which Particular Food and Drink Do You Consume the Most of Every Single Day?
    All I drink is water, or a cup of black tea with a sweetner but it does make me anxious but helps me go to the tolilet a little bit.………………………………………………………………………………………………………………………… …
    Are You Aware of Any Food Allergies or Intolerances?
    yes, Chaolmile, Sunflower seed, wheat, yeast, sugar, fruit, msg, tomatoes, vinegar, rye, chocolate, - I stick to celiac diet and candida diet at the same time but with additonal intolerances.
    Do You Have Any Intolerances to Medication?
    Yes, Some heachache tablets so I can only use paracetamol, sleeping tablets dont really work and make me feel like Ive reacted to them the next day.I took prozac last year and it made me so anxious and like my skin was really crawling I reacted badly to it and when ive tried them once before they made me put on lots of weight.
    Anitbiotics - At the begining of my ill health I had a large cyst in my groin and was given several cousres of antibiotics (tryticuline?? sorry about spelling) and then they had to drain it and then gave me more antibiotics, when i came out my belly was swollen and everything started from there on.


    Is There a Family History of Confirmed Diagnosis of: (please tick and specify which relation, eg mother, paternal aunt, maternal grandfather, maternal cousin)
    Dad: Englarged Heart, other problems simular to me but not diagnosed with anything.
    Grandad: Cancer Pancreas
    Mum: arthritis, sinisitus
    Nan: suffered multiple problems no diagnosis, osterporosis
    Sister: Same symptoms as me but on prozac
    Grandad two: Died heart disease
    
    Have You Been Diagnosed With:
    Thyroid Disease  ME/CFS  Fibromyalgia  Autoimmune Disease
    Diabetes  Heart Disease/Stroke  Mental Illness  Arthritis  Other
    Please Specify: (eg Hashimoto’s, Hypothyroidism, Lyme’s Disease)…………………………………………….…
    Tried to diagnose me with ME, Chronic Fatigue, Fibromylagia, autoimmune but they didnt know what, mental illness..…………………………………………………………………………………………………………… …
    Date Medical Advice First Sought: (approx) September 2005…………………………………… Age:…29 years old
    Date Symptoms Began: (approx)…jan / feb 2005…..… Age:…29 years……………………………………….……
    Was Private Advice Sought:  Yes 
    Reasons/Details: I paid to go private with Bupa, as I saw phyciatrist and she said I had a hormone problem and autoimmune by the black mark across my face and weakness etc. When i went I was taken seriously as I was so manic and in shock due to my facial weakness and also my doctor at the time said \i didnt need endocrine and I am sure that influenced my consultation.
    I was also advised to see a homeopath by PALS lady - she said hospital wont help me.
    The homeopath said I had chronic candida and vitamin deficences, put me on a strict diet but after 8 months wheni tried to eat normal it just comes back.
    …………………………………………………………………………………………………….…
    Personal History of Other Illnesses Before Diagnosis: (please give ages where possible)
    Glandular Fever  Severe Viral Infection (eg Flu)  Diabetes
    Any Other Illnesses: ....
    I caught herpes wheni was 19 years. Rather than the attacks reducing each time I ve suffered them constanly sometimes 3 times a month and hospital said never seen anything like it. When it all started 3 years ago I had a thick rash at base of spine which looked like shingles!!
    Did You Experience Any Major Life Events Before Diagnosis - Mental or Physical Trauma, Surgery
    etc: (please give ages where possible)
    Hysterectomy  Neck Injury/Whiplash  Tonsillectomy  Cholecystectomy
    Traumatic Pregnancy/Birth  Severe Accident  Divorce  Bereavement
    Any Other Events:…Car accident a year before with Wiplash. Left my fiance a few years before that. Lost my job due to sexual harrassment.

    Kindest regards

    Amanda Moseley

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    Exclamation Re: Hello my names Mand, nice to meet you all

    Absolute appalling Amanda. I cannot believe that in just a few years you have gone through so much in your life.

    I would blame only to incompetent doctors and their lack of interest in treating the patient

    I have been to the NSH doctors and every time I met a different one and had to repeat my story every time!!! It's total disgrace.

    It seems like so many things have gone wrong in such a short period of time that I wouldnt be able to say what is wrong with you!!! You have to do a fresh start and keep just one doctor who treats you as a friend and has a good relationship with you.

    I would definitely think that going through so much would have stressed your adrenals big time. You have got to check those cortisol levels for your own satisfaction. The test costs around £70 and you can order test kit here http://www.nptech.co.uk/

    A lot of stuff you have quoted is just going over my head but I am sure Jim may be able to help you out.

    Good luck and hope you recover very quickly

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    Re: Hello my names Mand, nice to meet you all

    Hi Mand,

    & great to see you on board!
    You have been through the ringer as SiD pointed out and I hope you start seeing more headway as you search along with the rest of us for improvement through best possible treatment.
    Your tests for thyroid show mild elevation of TSH but your FT4 is really low-normal. Have they tested you for "thyroid antibodies"? That would be the anti"TPO" and anti-"TG". Are you on thyroid hormone therapy?
    (Avatar pic is of me & wife, 2008)

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    Re: Hello my names Mand, nice to meet you all

    Hi Jim,

    Well, I saw a endocrine last June but was on the pill so he didnt pick up on low estrogen. Came off the pill 6 months ago which prompted my doctors to send me to Pituitary specialist at UCLH in euston square.

    She was testing me for hypo pit and I also mentioned thyroid antibodies and she agreed to test Thyroid antibodies, IGF-1 and teh others which are on my reults in my introduction.

    She wouldnt give me the antibody results!!! or the IGF-1..at my consultation I asked if I could possibly have hashmitos Encepalitis which affects you teh same as a stroke she knew what I meant and said teh antibody test would confirm it!!

    I am so scared Jim, I am scared of myself if I dont get to teh bottom of it soon I am scared of what I will do.
    I am very upset about the state of my face I have no confidence now but have been advised if they diagnose what it is it can be fixed or improved. I dont know if theres anything else which could affect my right side other than stroke or mysthavia Gravis maybe!!!

    The pituitary specialist has refered me to neuromuscular dept. at Queens square within the UCLH hospital so Iam hoping they will help me.

    I am not very copnfident though as I am being given the run around as I have no support and I ve been screaming help me for ages and now I think my File musthave been labeled Hypocondriac or something!!

    I have found a clinic in London and have spoken to the nurse who is very nice several times and she said its ridiculous and told me to come along and have tests. They test T3 etc and use armour and bio dentical hormones Iam just worried that I wont be able to afford the treatment as I am now out of work due to it all!!!

    I have contacted Dr.Peatfield but no reposnse yet and not sure who to go for??? The nurse is so nice and has called me several times for free an hour at a time and she kept telling me to hang on as thier doctor thinks I have more going on than hormones!! But i said if you can sort my hormones out Id be able to handle waiting to get my muscle problem diagnosed..so they havnt pushed me into a sale or anything..

    I also saw a oral consultant in January, i was sent there by my dentist following xray of jaw. I was very upset and tried to explain whats been happening and he didnt even get eye contact with me, just discharge me saying I need phyciatric help. Then I went back to dentist last month she refered me again, this time i said if nothings wrong why is my jaw going to the side, he said oh yes it is, refered me to maxifacial nurse..

    I saw her last week, she said you are grinding your teeth fitted me for gum shield but she said your jaw is veering due to your facial weakness I couldnt believe it, I said why didnt he awknowledge it then, she said they havent got time!! She said somethings affected your whole right side you will get a scan of your head when you get to london..

    I had one of my appointments with Nuero at Romford last week, but my doctors (who are also passing the buck) sent a letter with my referal from the oral consultant which was following my appointment in January, it said nothing wrong with my face I need phyciatric help!!! So when i got in the room he spoke to me like i was a nutcase and said he couldnt see anything wrong with my face or my neck !!! He also asked my mum and she said no as she is scared that if they dont aknowlege it I am going to kill myself as she knows how much it upsets me and is ruining my life as I dont know whats causing it...

    Sorry about all that I dont know what to do anymore ...

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    Re: Hello my names Mand, nice to meet you all

    Amanda all those doctors are crap... I'd say pick one Endocrinologist and stay with him/her and then make appointments according to his advice.

    May be your case is a bit different but thyroid is the basic to everything. If it's low or very high, it will have so many affect on other body parts plus hormones that you cant imagine. Nothing is gonna get fixed without thyroid being fixed first of all.

    Dr Barry Peatfield has got not time for everyone as he is soo soo busy person. If you really want him to treat you then you'll have to visit him. I dont think he'll have time to read your files either as it's better to visit and say things to face.

    Otherwise get referred to Dr. Skinner's clinic via your GP and at least he'll be able to prescribe you armour if needed and advise on other hormones.

    I can fully imagine how hard that would be for you to cope with daily life when there are so many things going wrong and wrong but just dont loose your heart and keep good faith. Everything will return to normal....dont loose your heart so soon.

    Your body is still young at 33 hence given it a chance, it will recover and heal without big issues....all it needs a bit of right treatment.

 

 

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